Hey guys, sadly ive had to change the song on my awareness vid :(…
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FIBROMYALGIA AWARENESS
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Stop Fibromyalgia Now
Informing You, Helping You Cope With and Treat Fibromyalgia
Hey guys, sadly ive had to change the song on my awareness vid :(…
Duration : 0:5:18
March 3rd, 2009 at 8:42 pm
Fantastic video! …
Fantastic video! Thanks for doing this! I have posted it on my facebook profile to try and make friends understand why ive been down recently,since having a flare up! I have had fibro now for 2 yrs,im a single parent to a very active 7 year old,and after giving up work 2 yrs ago,i have recently gone back to college,only PT to get me out the same 4 walls,it dosent take the illness away, but i guess we still have to try and get on with it!We just HAVE to cope,Love to anyone who`s suffering xx
March 3rd, 2009 at 8:42 pm
Its not a Disease, …
Its not a Disease, Its a syndrome.. apparently. Dammit I wish there was one definition we could all look too and we could all get better. I hate it, I hate it!!!
March 3rd, 2009 at 8:42 pm
Hey, Im 20 and was …
Hey, Im 20 and was diagnosed with Fibromyalgia/chronic fatigue after 2years of going through every other test known to man. It really really sux!! I cant work anymore or do anything. Ive had to give up on all the things I love doing. Im useless and no one listens or takes me seriously. My medication makes me unco and people laugh at me when I walk into things. I feel hopeless, I dont know what to do anymore. I cry everyday.. I want to work, I want to do the things I love. I Dont want to be sick!
March 3rd, 2009 at 8:42 pm
I love this video. …
I love this video. Im 38 and have fibro for about 6 yrs now. I lost my good job as a loan processor at a bank.
There are things you can do for it. Pain meds, getting exercise, walking is best for me.
I have been tring to get back to work part time now for 2 yrs with no luck, so I started college for graphic design. Im taking 2 classes this semester. Hopefully I can work from home when i graduate….. work around the rare times i get a “major” flare up.
March 3rd, 2009 at 8:42 pm
Yes! go back and …
Yes! go back and give them a mouthful, they need to be educated on this disease! The more we stand up to them and tell them about it the more people will start to take this disease seriously! Good luck to you and your mum!
March 3rd, 2009 at 8:42 pm
yes it is a disease …
yes it is a disease, more serious than what alot of people realize! and you’re right, it can distroy all of you! :(( Hang in there, keep the hope for better understanding and a good treatment/cure out soon!! There’s always hope.
March 3rd, 2009 at 8:42 pm
you’re welcome. i’m …
you’re welcome. i’m sorry the music hurt your head, i know how that is!
March 3rd, 2009 at 8:42 pm
Thanks for the vid, …
Thanks for the vid, my mum has been diagnosed with fibromyalgia and i have exactly the same symptoms. unfortunately though the doctor constantly puts it down to my weight which is ridiculous to be disregarded for this reason. Think i may go back and give them a mouthful now! Many thanks
March 3rd, 2009 at 8:42 pm
I have fibro as …
I have fibro as well, I was diagnosed when i was seventeen, I started 100mg morphenes and became severly incompasitated. Now I’m a medical marijuana patient with an authorization for medical marijuana from my primary care doctor, nothing else has helped at all! My family dosn’t understand or care enough to take the time to understand.
March 3rd, 2009 at 8:42 pm
Hey hi I want to …
Hey hi I want to thank you for this video. I’m positive now that I have this ’syndrome’(?) My doctor told me two years ago. And latley I’m having such odd systoms and now thanks to you and others I realize that I’m NOT losing my mind. I could have written the book on these symtoms I’ve had several since I was a CHILD! I’m digging for answers but strangely I don’t feel desperate…I don’t know maybe it’s because I am so used to it. (ps) the music was good but >> it hurt my head because of FMS~!
March 3rd, 2009 at 8:42 pm
Your Wrong people.. …
Your Wrong people…
It is a Disease…
It distroys all of you…
The only symtom I didn’t see is the headaches
The terrible headaches..with blood..
as I throw up-toss my cookies
a nice way 2 say it..
And with the headache is the total body shut down..where I can’t move even my head…Lane*
March 3rd, 2009 at 8:42 pm
The perfect song.. …
The perfect song..to a disturbing disease
I’m taking care of 2 lil ones
What about them..it’s not fair to them
I’m a cripple..I finally said it..it’s true
It’s true..I’m ing not ok
I hurt everyday
I have all symtoms you show but around 2
Blood comes out of me when I have a headache
once a month
I feel like I’m DYING..I probably am..Lane*
March 3rd, 2009 at 8:42 pm
THANK you for …
THANK you for putting this video out! I know I am not alone…although it feels like it sometimes.
Keep it up!
Gotta go lie down now…
March 3rd, 2009 at 8:42 pm
im 14 and have …
im 14 and have Fibromyalgia. its so hard to live with. my meds dont work, my family dont understand, and it makes you very lonely. feels like i’ve lost my childhood.
the support from the health service is rubbish. nobody wants to know because im a child and there is no funding for children with it.
Gentle fibro hugs to all affected,
lucy x
March 3rd, 2009 at 8:42 pm
THIS VIDEO IS THE …
THIS VIDEO IS THE BEST
I am so proud to have found this and of the people or person who made this .. Please contact me I want to talk to you please Thank you Sarah I am a fibromyalgia suffer…
March 3rd, 2009 at 8:42 pm
This is one of the …
This is one of the best videos I have seen about the frustration of having this dis-ease
March 3rd, 2009 at 8:42 pm
Keep up the good …
Keep up the good work we need to raise awareness and find a cure!
March 3rd, 2009 at 8:42 pm
I have meds now,The …
I have meds now,The Meds don’t work,not morphine,not methadone,I don’t know how to stop the constant pain.I have to tend to 2 little one’s by myself everyday.Your right,my people don’t understand,they just see me walk crippled and hurt like having labor pains,and I’m alone with this.I’m gonna stand strong anyway.I push myself every minute,everyday.
Lane*
March 3rd, 2009 at 8:42 pm
my body hurts so …
my body hurts so ing bad, nobody understands the nerve pain in my arms and legs, the burning inflammation, the headaches, the mental decline and irritability except other people with fibro. You dont know how much better this makes me feel.
March 3rd, 2009 at 8:42 pm
o yah and it’s not …
o yah and it’s not a disease…
im 15…
i’ve got every single symptom except the uterine things lol
my life sucks because since i was like 8 years old they treated me for all these different things and when i was 13 they thought i had auto-immunity so i was treated for that and it made me sick ….and now i have lupus too
March 3rd, 2009 at 8:42 pm
i have fibromyalgia …
i have fibromyalgia it sucks…
March 3rd, 2009 at 8:42 pm
I have to agree. I …
I have to agree. I too have fibromyalgia and the first thing I did was turn down the voume on this. The message, on the other hand, is awsome! Thanks for making this! :o)
March 3rd, 2009 at 8:42 pm
Great job! Good …
Great job! Good choice of music, too.
March 3rd, 2009 at 8:42 pm
I somewhat lost a …
I somewhat lost a friend to fibromyalgia. No, she didn’t die… but the stress was too much for her and we lived too far apart.. so she decided we couldn’t be together anymore… I’m trying my best to spread awareness, but I’m only one person.
March 3rd, 2009 at 8:42 pm
Great Video. I Love …
Great Video. I Love you choice of songs too. Ive had fibro for about 6 years now.