I am a twenty-one year old, female, diagnosed with Fibromyalgia, Chronic Fatigue Syndrome, and REM sleep disorder. My Dr. is now questioning the possibility of Myofascial Pain Syndrome… In the past I have tried physical therapy, acupuncture and multiple prescribed medications both for the pain and the sleep problems… none have been quite sufficient or cost effective, in the long run… any suggestions?
I have had Fibro since I was 16 and am now almost 36. I have the same diagnosises as you including Myofascial Pain Syndrome and others. Actually, MPS should be a given. In my experience pain medications do not work. I have also tried biofeedback, steroid shots, trigger point injections, nerve blocks, accupuncture, foot braces, wrist braces, carpal tunnel release surguries, and so much more. All just torture and I felt like a guinea pig.
My best advise is make sure to get plenty of sleep, take a multiple vitamin, keep active in at least low impact sports, and consider Magnesium and Malic Acid supplements (consult the doctor or a nutritionist to have your Magnesuim level checked- it is a simpe mouth swab and not painful), meditation does help some in keeping the pain back if you can seperate your mind from the pain, and try to take 2-3 warm Epson Salt baths a week (Epson salt contains Magnesium and soaking in a warm tub of it helps to get the mineral into the body. Magnesium aids the muscles in using oxygen and when the level is low which is typical in Fibro it can cause are cramps, spasms, and pain.)
Also, Fibromyalgia is a neurotransmitter disorder certain foods can trigger similiar symptoms to Fibro. Try eliminating Monsodium Glutamate from your diet. I did and some of my symptoms (chronic headaches and nausea) went away. It is in everything from Doritos to chicken soup. A few key finding’s of an FDA study found MSG to cause a “burning sensation in the back of the neck, forearms and chest”. Otherwise, learn your limits and pace yourself.
Good luck!
October 11th, 2008 at 11:35 pm
Grape seed extract is the best I know of for any auto immune disorder including Fibromyalgia, lupus, chrons, and any other type of inflamation. I get mine through a catalog company called meleluca.
References :
October 12th, 2008 at 12:25 am
Excercise seems to help mine..im 15 and have severe fibromyalgia and sleep problems…I noticed that over the summer when i worked out..at a slow pace..it made my fibromyalgia alot easier. I also take a Super B Vitamin. I have also heard that mangosteen juice helps build up the immune system. Many topical ointments can also be helpful depending on the severity of your fibromyalgia
References :
personal experiences
October 12th, 2008 at 1:14 am
I have had Fibro since I was 16 and am now almost 36. I have the same diagnosises as you including Myofascial Pain Syndrome and others. Actually, MPS should be a given. In my experience pain medications do not work. I have also tried biofeedback, steroid shots, trigger point injections, nerve blocks, accupuncture, foot braces, wrist braces, carpal tunnel release surguries, and so much more. All just torture and I felt like a guinea pig.
My best advise is make sure to get plenty of sleep, take a multiple vitamin, keep active in at least low impact sports, and consider Magnesium and Malic Acid supplements (consult the doctor or a nutritionist to have your Magnesuim level checked- it is a simpe mouth swab and not painful), meditation does help some in keeping the pain back if you can seperate your mind from the pain, and try to take 2-3 warm Epson Salt baths a week (Epson salt contains Magnesium and soaking in a warm tub of it helps to get the mineral into the body. Magnesium aids the muscles in using oxygen and when the level is low which is typical in Fibro it can cause are cramps, spasms, and pain.)
Also, Fibromyalgia is a neurotransmitter disorder certain foods can trigger similiar symptoms to Fibro. Try eliminating Monsodium Glutamate from your diet. I did and some of my symptoms (chronic headaches and nausea) went away. It is in everything from Doritos to chicken soup. A few key finding's of an FDA study found MSG to cause a "burning sensation in the back of the neck, forearms and chest". Otherwise, learn your limits and pace yourself.
Good luck!
References :
http://allergy.healthcentersonline.com/foodallergyintolerance/monosodiumglutamateallergy.cfm
http://www.healthy.net/asp/templates/article.asp?PageType=Article&ID=541
http://www.cfsan.fda.gov/~lrd/msg.html
http://www.mgwater.com/gafibro.shtml